Wednesday, February 13, 2008

Rants from Last August

Here is a couple of rants from a while back (August 2007). I'm feeling really good about Jack right now, and it feels perversely good to see how bad I felt then. He really goes on ups and downs. Over the Holidays, I was down, but he has had a really good month since then.
August 21, 2007
Seems like the whole day is spent trying to get vitamins into Jack. Right now he will not stay away from my fried rice, though he is not supposed to be eating it, while his waffle from this morning, laced with probiotics, an antifungal medication, and lactoflamx, “hidden” under almond butter and jelly, sits ¾ eaten after 100 verbal proddings. The lara bar, which has more antifungal (the last pill, a brutal one since it is red, has to be ground and has a strong taste, and needs to go 3 times per day) a DMSA captomer thorne pill (for chelation) and some other large white capsule I broke open (but not the zinc or magnesium, because I don’t think that will go well with the chelation pill), is also not arousing interest. Last night I took him for a walk at night to try to get him to finish his lara bar, but all he would do is stare at the street lamps in the little cement park on the corner. The light thing is getting much worse. Turn on or off a light and he comes running, stares at the light, and tells you whether you just turned it off or on. Headlights in the car, street lights, any light gets stared at now and its gotten much worse in the past couple of weeks. Doors are fading in interest, save the fridge.
He now takes about 19 pills – 3 xifaxin antifungals, 3 nutheras, 1 lactoflamx, 1 packet florastor, 2 coQmelts (eats these like candy), 1 super pro bio, 1 DMSA (MTW only), 1 methylaid, 1 tsp cod liver oil, zinc, magnesium, 1 amino dtox. Sorry, 17. Recommendation Number 15 from Dr.Hyman: Consider MeB12 shots. Yaright.


August 22, 2007
Jackson had a rough afternoon. I think he is in his terrible twos, a little late, and is used to getting what he wants when he verbalizes it, and has learned how to say no. I took him to Ballsley Park during the day to meet with Jen Girtz (OT), and he left the apartment grumpy, but appeared to be cheering up on the way there. But upon arriving, he peered warily at the lights on the poles (which were off) and was scared of them, the traffic, and just about everything else. Cried and couldn’t be consoled. Jen and I took him over to a small park on 59th West of tenth with a gymset, but he cried the whole time. Jen’s time is completely wasted lately. Jack’s sensory problems are coming to the fore, I sure hope Gramercy is equipped to deal with them. I used to be able to make Jack happy, but it is getting more difficult. I worry lately, that these problems are growing out of control, out of My control, and I hope somebody can help us bring Jack back to some semblance of normalcy before its too late. Very depressing time.

1 comment:

Unknown said...

It is amazing how different your supplements are from ours. I was wondering if you ever resolved your yeast issue. Florastar never worked for us, we used a probiotic called GI Flora by Allergy Research Group as well as B6/mag, B12/folic acid, multi, enzymes, EPA fish oil Did Florastar work for you? Do you still have yeast issues? What supplements did you find most effective?